ABA Providers Making Fun of Autistic People – Autism Women’s Network

https://autismwomensnetwork.org/aba-providers-making-fun-autistic-people/

Children are NOT pets to be trained with clicks like dogs? Who knew!

The facepalm is strong with this one. If I’ve said it once, I’ve said it a thousand times, YOU do not get to define my level of functionality by YOUR neurotypical standards.

YOU do not get to define my level of functionality by YOUR neurotypical standards.

YOU do not get to define my level of functionality by YOUR neurotypical standards.

YOU do not get to define my level of functionality by YOUR neurotypical standards.

YOU do not get to define my level of functionality by YOUR neurotypical standards.

YOU do not get to define my level of functionality by YOUR neurotypical standards.

Is it sinking in yet????

“I also saw another video showing how everyone should be using TAGteach, which stands for Teaching with Acoustic Guidance. Basically, it is clicking a device every time the person “behaves appropriately”. The neurotypical behaviorist defines what is “appropriate behavior”. It is like training dogs and it is dehumanizing. It can also trigger abuse survivors. It makes Autistics dependent on the validation of a non-autistic person for everything they do.”

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Inclusive autistic traits

ALL THE THINGS! ❤️💖

autisticality

Problems

Autism is big and messy and confusing, and no-one really understands it. It’s difficult to make a good summary and description of autistic traits, because generally no-one can agree on what autism actually is. But even taking that into account, I’ve never read a satisfactory article or leaflet summarising and describing autistic traits.  Every description I’ve ever read suffered from at least one of these problems:

  • Wrongly weighted. So many descriptions of autism written by neurotypical people focus completely on social traits. Often autism is described as an entirely social thing, and any other differences are considered incidental if they’re mentioned at all.
  • Vague. The “triad of impairments” is the worst offender here. It divides social traits arbitrarily into “interaction”, “communication”, and “imagination”, but there is absolutely no clear distinction between those categories. They’re meaningless and useless divisions that don’t remotely simplify the description, and so they serve no useful purpose…

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Stop attacking us and start listening to us: Autistic adults

I don’t even know how to caption this, or preface it. So I will do what I always do, sit down, close my eyes, and start typing.

When you say you’re an “autism warrior mom” I wonder if you have Autism. I hope so because then I know you’ll understand first-hand what it means to fight our fight.

“But that doesn’t mean I can’t advocate for my child” you say. Well, and good. Duly noted. But you, as a neurotypical, can only go so far. You can take that battle only to the level of YOUR understanding, not ours.

I know several NT parents who wouldn’t even fit in this category so please understand this is not for them. No, this is for the “Autism Speaks” militants, the ones who get combative towards us adults with ASD. The ones who can speak, and get a job. The ones who are STILL. AUTISTIC. We somehow are seen as an offense, an affront to their sensibilities because they – for whatever reason – see our lives and our ability to speak as a threat.

I see it on all of these public pages. These women, and I say it that way because these are mostly women who do the most posting and commenting. I understand in a rational way that this is not all inclusive, but for the purpose of this post, it’s going to stand. Hopefully most of you are aware enough to differentiate and separate yourselves from it if it doesn’t fit you.

Stop downing us.

Stop belittling, demeaning, or trying to write us off because you think your precious boy has it harder because he can’t speak, or because he still wears training pants.

We’re the ones who KNOW what it’s like from inside that box. We understand more than you can even imagine, what motivates your child to scream, hit himself, or stim in any number of ways. We’re the ones who can speak and so we do. We speak to TELL you the reason your kid is biting himself is because his routine was changed too much, or unexpectedly.

We’re the ones who go to the schools for our own kids, and get into battle after battle after God awful battle, to get the principals, the counselors, the teachers, to LISTEN when we say “this needs to be modified, and here’s the reason why.”

We’re the ones who want the school system to change its modus operandi so that TEACHERS have more adaptability in their mainstream classrooms, so that if your little Jeffrey needs to have a quiet space all his own in the room for when he gets overloaded, he HAS it and not get punished for it.

When they crinkle paper because of the sensory need for the sound or feel, during a test or when they’re nearing their threshold, it’s not another note sent home about how he “just doesn’t pay attention”. Or how “she needs to learn how the world works.”

Because frankly, the way the world works, SUCKS.

When a student needs to call mom because she knows that MOM can calm her down with just a few words if something happens in the classroom or at lunch. When he zones out during English or social studies and doesn’t finish his class work because he doesn’t understand the open-ended nature of the questions being asked, the teacher needs to know how to calmly explain – in detail – EXACTLY what is being asked of him. Without sending him into meltdown because the teacher didn’t explain it fully.

We’re the ones who drag teachers into meetings every two weeks for the same damn issue, because our kid is being bullied and it’s being IGNORED.

We want these schools and staff to go through decent training beyond their academic requirements, to learn how to be flexible on their students needs, ALL of their students. And to stop other kids from the ugly sniggering, making fun of us behind their backs, sometimes to their faces. To use these experiences as TEACHING moments, so ALL kids learn how to watch out for each other, to learn how everyone is a genius at something and just because they take longer or need to stim DOES NOT make them any less intelligent or capable of learning.

We want our states to get the funding they NEED to provide aides in the classroom for YOUR kid. The one you want a “cure” for, like he’s somehow a diseased menace. We want our states to stop cutting out those assistance services for ASD kids who become ASD adults.

We want our companies to stop blathering in about “inclusion and diversity” when they still allow for the EXclusion of anyone who doesn’t fit their ‘corporate’ mold. Their standard business model is flawed, and it needs to change. Companies need to allow for quiet work spaces, to allow for extra time if an ASD employee gets overloaded at work, without docking pay, or writing them up, termination, or plain out harassment. ADA accommodations don’t stop just short of Autism. And it needs to be understood by hiring managers, Human Resources personnel, and co-workers.

We want YOUR kid accepted in a mainstream classroom, right along side ours, and the neurotypical kids. Because until they are all integrated, there will continue to be a great divide of compassion and inclusion. You want an end to bullying? That’s how you achieve it.

WE fight this for YOUR children. For our children. We want your kid to be given every single chance he or she needs to grow up and HAVE a life worth living. To still get those services beyond age 18. Autism doesn’t just magically disappear once the legal majority is attained. Those services shouldn’t stop either.

So stop attacking us when we say that we don’t need a cure. We aren’t a ham.

Stop telling us that we don’t count because we can talk.

Stop telling us that we can’t possibly understand what YOU go through. We know what your KID goes through.

Start ASKING us, what can I do? What would help best? What should I look for? How should I respond when x, y, and z happens?

WE ARE the neurodivergent.

You’re welcome.

What changed when you were diagnosed?

Someone asked me that in an Autism group. Here’s my answer.

Hi. There’s an “AHA!” moment, and a huge mental sigh of relief. For me, at least, there was a sense of peace for the first time in my life, and also a bit of vindication. I had been poked and prodded, put on God only knows the number of psychotropics that never did ANY good. They just made me a fat zombie. I stopped allowing people to get away with calling me crazy or mental. I now had something tangible I could look at in my mind’s eye.

Because my Autism isn’t severe enough to warrant services, the diagnosis didn’t change much except to give me a starting point to research. I had a ground zero that I could begin to find and develop a coping plan for myself. It also explained why my daughter’s behavior seemed perfectly normal to me but abnormal to everyone else. I could explain things to her in a way that no one else seemed to be able to, because I had memories to draw on of what I would feel in her situation, and I knew the words to use that she’d understand.

I knew to play 20 questions with her because she couldn’t just tell me what happened or what was wrong. I knew how to look for the triggers if she got upset because of sensory overload. Hers and mind have some similarities but they aren’t mirrors. See things she can handle that I can’t, and vice versa. I’m sure some of her teachers thought I was completely around the corner when I explained the reasons for some of her reactions in school, but my suggestions always worked to eliminate her triggers. Or at least give her time to gradually acclimate.

It gave me permission to be more confident in BEING her mom, because I knew damn good and well that I wasn’t going to allow her to endure the same pain filled experience I had in school.

It gave me this sense and comfort to finally discover that I’m not the only one dealing with these same challenges. There’s a networking group I’m in and another lady there is also ASD. When we found out, we were both like “Hi Tribe!”

GREAT article by Lilsipper

We all have different dietary restrictions, allergies, and nutritional needs due to our own daily actives. What works for me may not work for you or the next person, but eating a clean diet (vegan or otherwise) with no preservatives is what can honestly change the way you feel…and to me, the way you feel is what health is all about!

http://www.lilsipper.com/what-the-health-my-thoughts